Cycle 2/8 down
Coming at you live from my bed. Currently watching Guardian’s of the Galaxy and dying to be walking through Avengers Campus in Disney California Adventure. My little robot friend currently attached and slowly dripping my third chemo medicine over the next 48 hours. My cold sensitivity is back full force, hatred for coffee, lock jaw, and weak, dumb, tingly hands. The most bizarre symptoms but it is what it is. This blog may be cut short due to tingly hands already getting upset with me and not wanting to be typing.
Adam had therapy this morning which he happily would have moved to go to the infusion lab with me but my best friend jess happily stepped in. Bestie in the Tessie pulled up and whisked me off to Corridor Flow (fav local coffee shop 10/10 highly recommend!! Not only is literally everything delicious the crew they bring in are all so kind and really care for the guests that enter the coffee shop. They remember me and details I tell them in passing and ask about how my job is going or how my kids are. Literally so, so kind!). Once we grabbed coffee, to the lab we went. Just like last time, they started with steriods and anti nausea drips and then I receive two different meds via port at the lab. It usually takes about three hours. My first cycle I passed out immediately, this one I was awake the entire infusion. I’m still awake and haven’t taken a single nap today which is so weird to me haha.I slept my whole first day last cycle.
I’m not saying any part of this is easy—mentally this shit is taxing. It’s such a roller coaster day to day. BUT this cycle (not even 12 hours into it and steriods definitely haven’t worn off yet so my next blog will probably read along the lines of “yeah, past codi is an idiot” haha. ) hasn’t been has bad as I was expecting. The day my pump was removed was the worst last time so we will see come Thursday. Right now my main complaint is that I can’t eat anything. As soon as it hits my mouth my entire jaw locks up and it’s insanely painful. That and brain fog…the chemo fog is so frustrating.
A sweet friend came by to chat and drop off dinner for Adam and I. It was so nice to just feel up to having conversation and enjoying friends company. Last week/weekend was the best and definitely will carry me through the hard times. I was able to go to Disney for a full day and see a parade that is a core memory of mine from taking Oliver and Emma 6 years ago in Disney World, video from 6 years ago above :’) . I got to do so many amazing sessions this past week and even was able to pop into sun and sea and see my favorite self care vendor. This week will be hard and for rest but knowing the good time is coming will help me not fall into the negative pity cycle.